Thursday, August 28, 2014
Monday, August 25, 2014
On Sunday morning, we were all getting ready for mass, and Joseph lays his newly pressed pair of khakis on the edge of the bed. He then gets in the shower. Meanwhile, Luke was laying in the middle of our bed, which quickly attracted Olivia, Joshua, and Eliana. The king size bed, covered in a mountain of down blankets and pillows, topped off with a cute baby, was too much to resist! They were rolling and doing somersaults off the left side, then the right side..... you can only imagine Joseph's face when he walked out of the bathroom in his boxers, anticipating that his nicely pressed pants were on the side of the bed still obediently waiting for him. The kids had already moved on, and left a mound of wrinkled church pants on top of the bed. I cannot tell you how hard I was laughing. I think I actually had tears coming out of my eyes. It was just one of those moments. And now that the kids are back in school today, you would think that I would be excited to have some order back in the house, and have time to make everything neat, organized, and clean again, but I miss them so much. :-(. My heart physically aches this time of year, when we are saying goodbye to summer, and goodbye to the freedom of having lazy days. I long to look out the window and see them playing explorer together, with their binoculars and bug boxes, and little straw hats on their heads. I already miss seeing my 12-year-old give soccer lessons to the younger ones in the front yard. I miss seeing Anna contrive up a new smoothie recipe, while dancing around the kitchen with Olivia to her Frozen music. Although there is much to mourn, I know there is much to celebrate. I know they are learning and growing, and experiencing new opportunities as we speak. Sigh.....
Friday, August 22, 2014
Wednesday, August 20, 2014
Tuesday, August 19, 2014
Monday, August 18, 2014
With Love, Luke
Sunday, August 17, 2014
Saturday, August 16, 2014
Sweet four month old Luke is proudly sporting his stripes in these cute leg warmers, providing warmth to his little legs, and easy access for diaper changes. Mommy gives these two thumbs up!
Friday, August 15, 2014
Today he will get his second chest tube removed, as well as his heart leads. This will make it much easier to pick him up and cuddle. Yeah! He does have some residual congestion as a result of the breathing tube, and will continue to be on a low dose of oxygen, and LASIK to remove the extra fluid around his heart. We were able to see his chest X-ray taken right before surgery, and his heart was taking up 2/3 of his chest cavity. Like any muscle, if its working hard all the time, it will get bigger. ❤ Seeing that xray made it even more real for us. Now that its fixed, over time, it will resume to a more normal size.
Yesterday evening, the hospital chaplain stopped by for a visit. He commented on how much he loves this hospital, as it is filled with so much love and healing. I have to admit, when we came to Levines Children Hospital for the first time on Monday, I was thinking the opposite. I couldn't get over seeing sick kids in wheel chairs and hospital beds, and wanted to see those children free from these walls, doing things that kids should be doing. But the chaplain was right. Isn't this life? Curve balls can be thrown at us at any time. Sometimes we can jump, sometimes we can move to the side and have a "close call", and sometimes they just hit us. And instead of pleading "why me", these are the opportunities for us to use our faith. To be reminded not to take things for granted. To be reminded that our Father does not abandon us. To bring us together as brothers and sisters through L❤VE, through His presence.
Dear Heavenly Father, today we are so grateful for Luke's life, for these amazing doctors and nurses, and for taking all of our fears and anxiety away during this process. Thank you for helping us accept the unknowns, and filling us with your peace and love. We will forever be grateful for this. Amen.
Thursday, August 14, 2014
His first night in the hospital was a steady and uneventful one. No major surprises surfaced, and Joseph and I were actually able to get some sleep. We had an incredible nurse that stayed with Luke the entire night, administering different medications which seemed like every 10 minutes, turning alarms off, moving tubes and wires around, etc. Talk about a high stress job! Thank God for good competent nurses. This morning they extubated him, and with that, he had some strider, which they medicated him for. They are going to wean him off the Phenol today, and put him on a low dose of morfeine. He should be able to resume eating today.